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Megan Kirkwood's avatar

Great post yet again! Recently at a conference on The Future of Privacy there was a medical student who asked about potential collection of newborn babies genetic data to irradicate certain genetic diseases (I can't remember the details off the top of my head) and one of the speakers, a legal expert, pointed to the ethical implications of using the data of someone who cannot consent (babies in this case) and what that might mean for their futures as adults. What was most interesting to me was that the medical student spoke of this data collection as revolutionary and failed to see the possible ethical implications, whilst the speaker was immediately alarmed. I think this speaks to your point about whether programmers need to take a Hippocratic Oath and the need to make transparent what happens to the data when it is collected, what will it be used for in future etc. I think these questions need to be addressed now, particularly for future generations whose information is digitised at a young age and therefore are more at risk.

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